Consumer Perspectives on Palliative Care in WA – Patients and Carers – have your say now

Patients with a life-limiting illness, their family/friend carers and anyone who has been a family/friend carer of a person with a life limiting illness in the last five years is invited to participate in a consumer survey of patient and carer perspectives on palliative care. The survey is open to people who have accessed palliative care as well as those who have not accessed palliative care.

The survey is open from TUESDAY, 7 JULY to SUNDAY, 16 AUGUST and can be accessed via the links below.  Please click on appropriate link for your circumstances:
  • Close family members/friend carers:
    • of someone with a life-limiting illness who IS USING palliative care services
    • of someone with a life-limiting illness who IS NOT USING palliative care services
    • of someone who died from a life-limiting illness in the last five years (2015-2020) who DID USE palliative care services
    • of someone who died from a life-limiting illness in the last five years (2015-2020) who DID NOT USE palliative care services
  • Current patients with a life-limiting illness who:

If you would prefer to complete a printed copy of the survey please contact Perron Institute on (08) 6457 0312 or email leanne.jiang@perron.uwa.edu.au

More information about the project

Professor Samar Aoun is leading this project through the Perron Institute which is titled: “Independent Review: Patient and carer perspectives of palliative care service models in WA”.

The aim of this project is to find out from consumers their perspective on the palliative care they (patients and their family members) have received or are receiving, to explore gaps between what people currently receive in palliative care in WA and what they would like to receive.  It will also explore the needs of those who were unable to access palliative care.

There are three components to the project:

  • A literature review
  • Consumer survey
  • Service provider consultations.

Professor Aoun said “We want to know what patients and carers feel is working well and where there are perceived gaps in meeting the priorities of the WA End-of-Life Palliative Care Strategy 2018-2028.  The findings from the consumer survey will be discussed in service provider consultation forums across the State to develop recommendations for enhancements in palliative care models in Western Australia.”

The final report will provide recommendations on the future provision of palliative care services across Western Australia and will be available December 2020.

This project is a partnership between Perron Institute, La Trobe University and Curtin University with funding from the Department of Health, Western Australia.

Ethics Approval – HEC20232

Support Documents

Support Services – Grief and Bereavement

Definitions of Several Used Terms

List of Palliative Care Services in WA

Support Services and Information – Palliative Care

Participant Information Sheet

Project Flyer