15 May 2019

MND workshop targets health professionals

One of the most recent workshops in a planned statewide series on caring for people diagnosed with motor neurone disease attracted a total of 45 nurses, physiotherapists and other health professionals.

This all-day workshop in Perth on 8 May was held during MND Awareness Week. The free workshops are organised by the Motor Neurone Disease Association of WA in collaboration with the Perron Institute. The aim is to increase the understanding of the level of care required by people with MND and their families. The program was developed and recently updated by institute researcher, Professor Samar Aoun (pictured left) and clinical neurologist, Dr Rob Edis (pictured right).

Although there is yet no known cure for this progressive and terminal neurological disease, it is the subject of significant research around the world, including at the Perron Institute. Meanwhile, with a multidisciplinary approach, much can be done to maximise the outcomes of care and support for people affected.

Neurologist Dr Robert Edis, who heads the motor neurone disease clinics at the Perron Institute, spoke about the clinical signs, disease progression and management of respiratory problems and other symptoms. Professor Aoun, who leads Supportive and Palliative Care Research at the Perron Institute, covered psychological support for patients and families and the palliative approach to care.

Other program topics included respiratory assistance, communication and assistive technology for people with MND, the role of health professionals in care giving and an inspirational case study.

Feedback on the quality of the presentations and the overall value of the content to those present was very positive. The next workshop is scheduled in Albany on 16 August.

If you would like to attend, please email Christina Line at Christina.Line@mndawa.asn.au.